By Kate Thayer
Barbara Salata was anxious, couldn’t sleep and told her family it felt like she was having a heart attack. The 77-year-old Libertyville woman would forget things and generally “wasn’t the mom that we knew,” said her son, Bob Salata Jr.
Despite a sleep apnea diagnosis and a sleeping pill prescription, Barbara Salata wasn’t getting better.
“It became obvious … we need to get a new team to look at this differently,” her son said. “I needed someone to listen to her. We were desperate to find someone who could find some direction for my mother’s health care.”
So the family hired a private patient advocate, a growing field of health care professionals. The advocate, Teri Dreher, suggested changing Barbara Salata’s medications, which the family says alleviated the most troubling symptoms. Dreher worked six months to find a new team of doctors for Salata, who said she now feels more like herself.
Her family credits the changes to Dreher’s fresh perspective and her time managing Salata’s care.
“It was a service I wasn’t even aware was available,” Barbara Salata said.
That’s because private patient advocacy remains relatively uncommon, said Trisha Torrey, founder of the Alliance of Professional Health Advocates.
Private patient advocates are not affiliated with hospitals or doctors. Instead they work as private consultants for patients and help manage health needs. Services vary from attending doctor visits, researching medical treatments and helping with medical equipment purchases to handling insurance claims, disputing hospital bills and scheduling appointments.
Advocates say they fill a gap in the health care system by making sure patients, or, as they call them, clients, are educated.
They say their involvement relieves stress, especially for those dealing with serious or chronic illness, and that their vigilance and expertise can avert medical errors.